Content A - Z

a

• A bright future with the Patient Engagement Open Forum
• A call for patients to interact with eTRIKS project: help shape the future of how medical research is shared!
• A Coherent Approach Essential to Make Empowerment A Reality
• A common statement to allow vital EU health research
• A day to promote responsible use of antibiotics
• A European Council for Health Research including a patient perspective?
• A flavour of EPF’s position on the Medical Devices Proposal
• A glimpse of our 2012 Annual Report
• A History of EPF
• A Joint response to the European Commission’s Pharmaceutical Strategy for Europe
• A Model for Patients' Involvement in HTA
• A new Joint Action on Chronic Disease in sight
• A new model for working with Medical Societies
• A new step for Health Technology Assessment
• A Pact For Patient Safety
• A Patient Access Partnership in Bulgaria
• A Patient Access Partnership in Bulgaria
• A patient course to understand clinical research in cancer
• A patient journey through Europe
• A patient-centred approach to regulatory affairs
• A patient-centred vision for Unmet medical needs
• A Positive Meeting with Commissioner Kyriakides regarding the EU4Health Programme and funding for NGOs
• A Roadmap to Achieve Universal Health Coverage for All
• A streamlined proposal to facilitate clinical trials
• A strong Patients' Movement in Slovakia
• A survey on risks and Benefits for patients and families
• A sustainable framework for biosimilars medicines in Europe
• A toolkit to help you make your way through the Cross-Border Healthcare Directive
• A video to understand the InterQuality project
• A working group to develop a long-term strategy on patient/public health organisations' role and sustainability
• A year into PARADIGM to advance patient engagement in medicines development
• About
• About the NEF Fund
• Access to Healthcare
• Access to Healthcare Survey Report – What Patients Tell Us
• Access to Medicines
• Accessing healthcare abroad: a European network of patients’ contact points
• Accounts 2005-2006
• Accounts 2007-2008
• Act now for Patient Empowerment!
• Act now for Patient Empowerment!
• Action plans of Healthy and Active Ageing
• ADAPT SMART General Assembly: Patients’ Views at the Centre
• ADAPT SMART project kicks off
• ADAPT SMART: call for patient representatives
• Adherence
• AdHopHTA
• Adopt Health Technology Assessment at Hospital
• Advancing patients’ access to medicines in the pharmaceutical legislation
• Advocacy 101 – a free-of-charge, online advocacy course for young patients
• Advocacy Campaigns
• Aedan Kaal
• Ageing
• Ageing with HIV
• AGM & Leadership Meeting 2018
• AGM 2010 Presentations and Documents
• AGM 2015 - Board candidates
• AGM 2018: we are not only a budget line, we are patients.
• AGM 2019: farewell to our Secretary General, Nicola Bedlington and what lies ahead for EPF
• AGM 2022
• AGM 2022
• AGM 2023
• AGM 2024
• AGM 2024
• AGORA
• AI in Healthcare: Advancing Patient-Centric Care through Co-design and Responsible Implementation
• AI Knowledge Hub
• AI Research and Policy Resources
• AI Training & Capacity Building Resources
• AI Webinar Series
• Albino Bruno
• All files
• Alzheimer Europe
• Amanda Bok
• Amina Berbić
• Amplifying Patient Advocacy on Antimicrobial Resistance (AMR)
• AMRC - Association of Medical Research Charities(2)
• An Ambitious Agreement on EU4Health Programme
• An app to report side-effects and get safety information: Give your opinion!
• An employment pact for patients with multiple sclerosis
• An Important Week for the Debates on Pricing and Reimbursement of Innovative Medicines
• An inclusive EU4Health Programme to better meet the needs of people in Europe
• An international survey on patient involvement in HTA
• An Open Memo to the Health Industry
• An update on eHealth with key stakeholders
• Anastasia Semaan
• Anca Toma
• Anders Olauson
• Andreas Christodoulou
• Animal Testing
• Anita Arsovska
• Anna Revilla Bruñol
• Annual General Meeting (AGM) 2021 Recap
• Annual General Meeting 2021
• Annual Reports
• Annual Work Plan
• Annual Youth Meeting: kick-off the project EMPATHY
• AOECS - Association of European Coeliac Societies
• AOPP - Association for the Protection of Patients' Rights (Slovak Republic)
• APO - Alliance of Patient Organisations (Republic of North Macedonia)
• Applications are open for the 10th European Health Award!
• Apply now for Duchenne Patient Academy 2020
• Apply now for the EU Health Award!
• April 2014
• April 2015
• April 2016 – EPF Prominent Player in Health-Related Policy Dossiers
• April 2017 – EPF Annual General Meeting: Wider, Stronger, Louder
• Archives
• Associate Members
• August 2014
• August 2015
• August 2016 –Visual, Responsive and Reliable Communications

b

• Background papers
• BAG Selbsthilfe
• Balance Sheet - 2007-2008
• Balance Sheet & Accounts
• Balance Sheet 2005-2006
• Balance Sheet 2008-2009
• Balance Sheet 2009-2010
• Balance Sheet 2011-2010
• Balance Sheet 2012-2011
• Balance Sheet 2013-2012
• Balance Sheet 2014-2013
• Balance Sheet 2014-2015
• Balance Sheet 2015-2016
• Balance Sheet 2016-2017
• Balance Sheet 2017-2018
• Balance Sheet 2018-2019
• Balance Sheet 2019-2020
• Balance Sheet 2020-2021
• Balance Sheet 2021-2022
• Ball is in Council’s court to end health discrimination
• Bank Accounts
• BAPD - Bulgarian Association for Patients Defence
• Become a Member
• Benefits and risks discussed at the EFPIA Patient Think Tank
• Best Practices for Patient Safety and Quality Improvement
• Better information to patients on food and nutrition
• Bianca Pop
• Bianka Tomózer
• Biologics and Biosimilars Exploratory Meeting in Brussels
• Birgit Dembski
• Black triangle on medicines under additional monitoring
• Blaž Urbanc
• BLOG - From Nurse to Equal Partner: Read the Story of Inge, IBD Belgian Patient
• Blog - Youth Cancer Europe 2017 Meeting – ‘Patients Are Not Alone’
• Blog: “Looking at health through a gender lens”
• BLOG: EUFAMI Celebrates ‘Home’ – Art for Better Mental Health
• BLOG: IDF Europe Celebrates World Diabetes Day in the EU Institutions!
• BLOG: Men, Work And Cancer - A Guide for Men Staying or Returning to Work after a Cancer Diagnosis
• Blog: Patients have a unique insight
• Blog: Patients organisations and clinical research
• BLOG: Social Media Milestones for the EPF Youth Group
• BLOG: We want equal access to health for all!
• BLOG: What Place for Healthcare in Ireland? Are there Implications for Europe?
• Blog: Why should patients care about the EU?
• BLOG: World Kidney Day 2018
• BLOG: World Mental Health Day: Wellbeing At Work Is An Asset
• Board election questionnaire
• Borislava Ananieva
• Breakfast Meeting of the MEP Interest Group on Brain, Mind and Pain
• Brexit: Maintaining the exchange of health data
• Brexit: our asks to prioritise patient safety and public health
• Brian West
• Bringing Patient Engagement to the EATRIS-Plus Annual Meeting
• Brussels 20KM Registration
• Building capacities with our national and European members
• Building on the Success of the Empowerment Campaign - Let's Explore the Roadmap!
• Building our members’ communications capacity
• Building the Capacity of Patient Organisations in Hungary
• Bulgaria

c

• Call for abstracts: Patients to change the face of healthcare
• Call for candidates for the Steering Group of the Patient-MedTech dialogue – Deadline 19 April
• Call for Feedback – the European Health Data Space initiative
• Call for greater involvement of patient organisations to address AMR
• Call for interest – EATRIS-Plus searching for patient advisory committee members
• Call for interest – Gravitate Health Project searching for User Advisory Group Members
• CALL FOR INTEREST – LABEL2ENABLE Searching For User Advisory Group Members
• Call for interest – PharmaLedger Project searching for Advisory Board Coordinators
• Call for Interest - Roadmap Initiative on Lay Summaries of Clinical Trials Results
• Call for Interest to participate in EPF cluster on nutrition
• Call for interest to take part in new EPF Working Group on Digital Health
• Call for interest to take part in new EPF Working Group on Digital Health
• Call for interest to take part in new EPF Working Group on Universal Access to Healthcare
• Call for Interest: Join the HEU-EFS Patient Advisory Group
• Call for Interest: Join the IDERHA Patient Advisory Board
• Call for interest: membership of the European Society of Radiology – Patient Advisory Group
• Call for interest: Patient contributors in the development of clinical nutrition guidelines and lay summaries
• Call for interest: Steering Group of the Patient-MedTech Dialogue
• Call for interest: Workshop on Access to and Uptake of Biosimilar Medicinal Products (20 June)
• Call for nominations for the EPF Board
• Call for patient advisors for the CORE-MD project: Evaluation of high-risk medical devices
• Call for patient organisations active in the field of anti-microbial research
• Call for Patient Representatives for the COMPAR-EU project
• Call for Patients EDiHTA
• Call for patients who have experienced Antimicrobial Resistance (AMR)
• Call for patients who have personal experience of cross-border healthcare
• Call for speaker on integration of care - European public health conference (Milan, 16 October 2015)
• Call on Payers to Improve Patients’ Access to Medicines
• Call on Payers to Improve Patients’ Access to Medicines
• CALLIOPE Network
• Calls for Tender
• Campaign "Patients Prescribe" on patient empowerment
• Campaign for the 2014 EU Elections
• Campaign for the 2019 EU Elections
• Campaign leaflet in all EU languages
• Campaign on Access to Healthcare
• Campaign Video
• Capacity Building
• Capacity Building in Bulgaria: Fundraising 101
• Capacity Building Module on Empowering Leadership and Positive Governance 2018
• Capacity Building Module on Fundraising and Engagement 2021
• Capacity Building Programme – Fundraising Module in Hungary
• Capacity Building Programme – Poland
• Capacity Building Programme: call for experts in Bulgaria, Hungary, and Romania!
• Capacity Building Programme: Focus on Romania
• Capacity-Building Session on Patient Safety
• Careers
• Careum Congress: What do patients want from policy-makers?
• Caring for carers of those living with schizophrenia
• CBHC EU conference - Expression of interest
• CBHC Ireland/United Kingdom - Registration form
• Celebrating five years of impact with Data Saves Lives
• Celebrating the International Clinical Trials’ Day!
• Celebrating the International Parkinson’s Day!
• Chain of Trust
• Chain of TRUST project: Closing meeting and new Horizons
• Chain Of Trust project’s findings: follow-up with National roundtables
• Chain Of Trust: the closing conference
• Charter on Patient Empowerment
• CHRODIS +: including the patient perspective in every step!
• CHRODIS Delphi Surveys: First Impressions
• CHRODIS: Improving the Multimorbidity Care Model
• CHRODIS+
• CHRODIS+ Final Conference on Chronic Diseases - Making Europeans happier, healthier and more active by implementing good practices
• CHRODIS+ Online Conference on Chronic Diseases
• CHRODIS+ Project visits Slovenia, Finland, Croatia, Greece and Serbia
• CHRODIS+ project: EPF ensures the patient perspective in implementation pilot activities
• Civil society raises concerns about migrant health protection
• Claudia Louati
• Clinical Trials
• Clinical Trials - EPF Asks For More Systematic Patient Involvement In Ethics Reviews
• Clinical Trials – EPF to release Position Paper on Informed Consent
• Clinical Trials Informed Consent Paper
• Clinical trials: 731 amendments tabled by MEPs
• Clinical Trials: Response to Public Consultation on Lay Summaries
• Clinical Trials: the lack of patient involvement a backward step
• Close of SUSTAINS, the Electronic Health Records project
• Closing event of the Summer Training Course for Young Patient Advocates
• Closing the Renewing Health project
• Commission nominates patient representatives in Pharmacovigilance Committee
• Commission Recommendation on EHR: a step towards a patient-centred European digital health framework
• Communication experts, let’s meet & share our knowledge!
• COMPAR-EU
• COMPAR-EU and EPF 2019 – read what’s next for this year
• COMPAR-EU Final Conference Advocacy Event
• COMPAR-EU WP 3 final workshop
• COMPAR-EU: Discussing Preferred Patients’ Outcomes
• COMPAR-EU: focusing on patients' prioritiy outcomes
• Compar-EU: Improving Self-management Interventions
• Complete the Joint Research Centre survey on data privacy and use of personal data for research purposes
• Completed Projects
• Components
• Compromise reached on Professional Qualifications Directive
• Conference on Equity of Access to Quality Healthcare
• Conference on Medical Nutrition and Prevention for EU Patient Groups - 29 June 2017, Brussels
• Conference on Quality, Safety and Cost-Effectiveness
• Conference Towards better prevention and management of chronic diseases
• Consultation - Draft Work Plan 2016
• Consultation for revised and consolidated EPF Statement on Pricing and Reimbursement
• Consultation on discrimination in education and in employment: your input needed
• Consultation on EUPATI’s guidance for patient involvement in medicines’ R&D process
• Consultation on SPH vision paper
• Consultation on the Opinion of Expert panel on effective ways of investing in health on “Access to health services in the EU”
• Consultation paper: Informed consent in the clinical trials regulation
• Consultation: Transparency is our legitimacy currency, let’s protect it!
• Consultations
• Contact Us
• Contribute to the Consultation on EC's Opinion on Quality of health care and patient safety (Deadline: 15 Sept.)
• COPAC - Coalition of Patients' Organisations with Chronic Diseases (Romania)
• Cor Oosterwijk
• Core EPF communication tools to become multilingual
• CORE-MD
• Cornelia Păuna
• Council on data protection: Uncertainties on patients’ rights
• Count us in! – A New Edition of the Summer Training Course for Young Patient Advocates
• Countries & Activities
• COVID-19 and Brexit – Protecting patients across Europe from pandemics
• COVID-19 has shown EU action on health is more urgently needed than ever
• COVID19 Resource Point
• COVID-19 Resource Point
• COVID19: "The time to invest in a healthy future is now"
• COVID-19: Navigating the Digital Waters of Misleading Health Advice
• Cross-border Healthcare
• Cross-Border Healthcare – EPF paper on State of the Implementation
• Cross-Border Healthcare – EPF presentation at DG SANTE meeting
• Cross-Border Healthcare: Still a Long Way to Go
• Crossing borders for healthcare in Spain, Poland and Bulgaria
• Crossing the borders for healthcare: First stop in Croatia
• CyFPA: Pancyprian Federation of Patients Associations and Friends
• Cypriot patient organisation advances health literacy in schools
• Cystic Fibrosis Europe

d

• Dalila Lopes
• Data Protection
• Data Protection Regulation Now Officially Published
• Data Protection: health research overlooked by decision-makers
• Data Saves Lives
• Data Saves Lives
• Data Saves Lives 5th Anniversary Event
• Data Saves Lives Coffee Talk: the Role of Medical Technology in Harnessing the Power of Personal Data
• Data Saves Lives Coffee Talk: the Role of Medical Technology in Harnessing the Power of Personal Data
• Data Saves Lives End of Year Workshop
• Data Saves Lives: Why health data matters
• DataSavesLives Tweet Chat on closing the health data gap between West and Central/East Europe
• DataSavesLives Webinar: 'COVID-19 and beyond: what is the role of governments in tracking their population’s health and how can we support them?'
• DE - Dystonia Europe
• Dear President Juncker, EU Health Collaboration is crucial for Europe’s future
• DEBRA International - Global Network of Epidermolysis Bullosa Support Groups
• December 2014
• December 2015
• December 2016 – Representing Patients at the European Medicines Agency
• Declaration Fest! International Festival of Health and Human Rights
• Depression – In and Out of a Dark Tunnel
• Development of Therapeutics and Vaccines
• DHE - Digital Tools for Patient Empowerment and Person-Centred Care – Workshop
• DIA 2018 GLOBAL ANNUAL MEETING: Towards Meaningful Patient Engagement
• DIA Patients Included Fellowship - applications open
• Digestive Cancers Europe
• Digital health
• Digital Health Europe Project Kick Off Meeting
• Digital Health webinar - Artificial Intelligence in Healthcare - Where are we?
• Digital tools for citizen empowerment and for person-centred care with a particular focus on the interaction between citizens and healthcare providers
• DigitalHealthEurope
• Dimitrios Athanasiou
• Dimitrios Athanasiou
• Directive on Patients' RIghts in Cross-Border Healthcare
• Djilo Tchatchouang
• Do you have a Youth Group? What is your Youth-related activity? We want to hear from you!
• Dominik Tomek
• Dominik Tomek
• Driving better outcomes for better value: launch of the Early Intervention Toolkit!
• Dystonia Europe organises workshop on brain disorders at the European Parliament

e

• EAMDA - European Alliance of Neuromuscular Disorders Associations
• EAMDA Executive Committee Meeting – new strategy and ideas for the future
• EAMDA online International conference on neuromuscular disorders
• Early Intervention Key to Quality of Life and Sustainable Health Systems
• EATG - European Aids Treatment Group
• EATG launches Survey Report on HIV & Mental Health
• EATRIS Conference: "Building Bridges in Translational Medicine"
• EATRIS-Plus
• ECHDO – European Congenital Heart Disease Organisation
• ECO - European Cleft Organisation
• EC's evaluative study on the cross-border healthcare Directive
• EDiHTA
• Educational workshop on pharmaceutical incentives
• EFA - European Federation of Allergy and Airways Diseases Patients' Associations
• EFAPH - European Federation of Associations of Patients with Haemochromatosis
• EFCCA - European Federation of Crohn's and Ulcerative Colitis Associations
• EFCCA in the spotlight
• EFGCP Annual Conference
• EFGCP conference “Faster and Safer Paths to New Treatments with Medicines and Medical Devices”
• EFGCP Multi-Stakeholder Workshop on Communicating Clinical Trial Results to Meet Public Needs (29 May 2015)
• EFGCP/MedTech Europe Multi-stakeholder Workshop on risks mitigation in medical devices
• EFHPA - European Federation of Homeopathic Patients' Associations
• EFNA - European Federation of Neurological Associations
• EFNA Campaign: 1 in 3 Europeans fit under the Umbrella – Do You?
• EFNA working with Young Europeans with Neurological Conditions
• EFPIA Health Collaboration Summit & Award 2015 (28-29 October 2015)
• EFPIA Patients’ June Think Tank
• EFPIA Think Tank
• EFPIA/PhRMA Collaboration Summit
• EGA – Your opinion needed on transparency requirements and conflicts of interest!
• EGAN - Patients Network for Medical Research and Health
• EGAN Training on Medicines Development in Children
• EGM 2020
• EHC - European Haemophilia Consortium
• EHDEN
• EHDS Consensus Statement
• E-Health at a glance with the EPF seminar
• eHealth Governance Initiative
• eHealth Week 2016: Empowering People and Patients
• eHealth: from ambitions to actions
• eHealth: Much More than Patients’ Data
• EHLTF - European Heart and Lung Transplant Federation
• Eimear O’Rourke
• EIP-AHA: From plan to action
• EIWH - European Institute of Women's Health
• EKPF - European Kidney Patients' Federation
• Elena Balestra
• Elena Moya
• Elisabeth Kasilingam
• Elisabeth Kasilingam
• Elisabeth Kasilingam appointed as EPF's Interim Executive Director
• ELPA - European Liver Patients’ Association
• ELPA and DiCE meeting on liver cancer. ‘Together we are EVEN stronger’
• EMA Celebrates 10 Years of Patient Involvement
• EMA communication: "pool of reviewers" for herbal medicines summaries
• EMA communication: EMA recommends avoidance of certain hepatitis C medicines and amiodarone together
• EMA consultation: Draft guideline on the clinical development of medicinal products intended for the treatment of pain
• EMA Consultation: Safety of high-strength and combination insulin products (Deadline: 2 April 2015)
• EMA Focuses on Antibiotic Resistance: A Future Global Threat?
• EMA gathers the views of young patients
• EMA public meeting covid19
• EMA Survey on the use of social media and medicines (Deadline: 23 November 2014)
• EMA's pharmacovigilance risk assessment committee (PRAC) adopts rules of procedure on public hearings
• EMHA - European Migraine and Headache Alliance
• EMPATHiE – Empower patients for better results!
• EMPATHiE (Tender Study)
• EMPATHY
• EMPATHY from a young patient’s perspective
• EMPATHY from the external stakeholders’ perspective
• EMPATHY from the patient leaders’ perspective
• EMPATHY seen through medical students’ lens
• EMPATHY: what are the next steps?
• Employment
• Employment and chronic conditions: an overview of EPF's latest initiatives
• Empowering Patients in HTA: Joint Initiative by OPEN Health, EPF, and EAMDA to Optimise PICO Scoping
• Empowering patients in the management of chronic diseases
• EMSP - European Multiple Sclerosis Platform
• EMSP promotes employment for young people with MS
• EMSP Virtual Conference 2020
• Encouraging News on HTA Collaboration
• ENFA - European Network of Fibromyalgia Associations
• Ensuring Consistent and Coherent Application of EU Rules on Medicines’ Advertising
• ENUSP - European Network of (ex)users and survivors of psychiatry (ENUSP)
• ENUSP's 6th Empowerment Seminar in Brussels
• EPF – Medicines for Europe Dialogue
• EPF & H20 Joint statement on Health Systems after COVID-19 Report
• EPF & Medicines for Europe Seminar (Brussels, 31 May)
• EPF 20 | Nicola Bedlington shares her story in The European Patients' Podcast
• EPF 2019 Summary Report now out
• EPF Access Campaign - Concrete Ideas to Achieve Universal Health Coverage
• EPF Access Campaign meeting
• EPF Access Working Group Meeting – 28 February 2017
• EPF Access Working Group Meeting summary - 18 October
• EPF acknowledgement of Financial Support 2010
• EPF acknowledgement of Financial Support 2011
• EPF acknowledgement of Financial Support 2012
• EPF Acknowledgement of financial support 2013
• EPF Acknowledgement of financial support 2014
• EPF Acknowledgement of financial support 2015
• EPF Acknowledgement of financial support 2016
• EPF Acknowledgement of financial support 2017
• EPF Acknowledgement of financial support 2018
• EPF Acknowledgement of Financial Support in 2020
• EPF Acknowledgement of Financial Support in 2021
• EPF Acknowledgement of Financial Support in 2022
• EPF Acknowledgement of Financial Support in 2023
• EPF Acknowledgment of Financial Support in 2019
• EPF active on medicines and medical devices
• EPF adopts recommendations for the trilogue on Medical Devices Regulation
• EPF Advocacy Toolkit on the Revision of the EU Pharmaceutical Legislation
• EPF advocates a patient perspective on data protection
• EPF advocates a patient perspective on the “Health for Growth” proposal
• EPF advocates the patient perspective on Professional Qualifications
• EPF and EUPATI at the DIA Europe 2019 Conference – Partnership in practice
• EPF and EURORDIS call on payers to support access to healthcare
• EPF and Medicines for Europe Dialogue
• EPF and PGEU jointly organised European Parliament event to present stakeholder views on new pharmacovigilance rules
• EPF and Public Health NGOs develop their vision for the future of Europe
• EPF Announces Departure of Usman Khan as Executive Director
• EPF Annual General Meeting (AGM) 2019
• EPF Annual General Meeting (AGM) 2022
• EPF Annual General Meeting and HTA Seminar
• EPF Annual General Meeting: a new Board and a new President!
• EPF Annual General Meeting: Wider, Stronger, Louder
• EPF Annual Report 2015 - Your feedback needed!
• EPF at OECD: Focus on Patient Involvement and Patient Safety
• EPF attended regulatory workshop on Medication errors
• EPF attends the European Health Forum Gastein 2015
• EPF begins the PERISCOPE Project
• EPF Blog: “Living with diabetes is like breathing”
• EPF Blog: “My experience as a Young Gasteiner”
• EPF Board Elections - Nominate a candidate now!
• EPF Board raises hands for Rare Disease Day
• EPF Breakfast Briefings 2017 – starting in March
• EPF Breakfast Briefings: A Great Way to Start Your Day!
• EPF Briefings on the new Medical Devices Regulation
• EPF brings a European perspective to Belgian healthcare
• EPF Call for good practices of patient organisations’ cooperation with NGOs representing underserved, vulnerable groups
• EPF call for interest: Take part in a webinar on eHealth!
• EPF call to members: Take part in new task force on discrimination in the workplace and on the employment market
• EPF call to support Wold Arthritis Day!
• EPF calls for a strong EU health agenda in response to this year’s CSRs
• EPF calls for Equal Treatment for Patients in Education and Employment
• EPF calls for patient-centred EU framework on HTA
• EPF Calls For The Recognition Of The Added-Value Of Patient And Public Health Organisations
• EPF calls on EU Member States to put patients first and make progress on HTA negotiations
• EPF calls on EU Member States to put patients first and make progress on HTA negotiations
• EPF calls on the newly elected mandate to ensure health is an EU policy priority and that patients’ rights are implemented across the EU
• EPF campaign for the 2014 EU Elections
• EPF Campaign for the 2014 EU Elections
• EPF Campaign on Access to Healthcare: Halfway Through
• EPF Campaign on Universal Access – Kick-off Meeting
• EPF Campaign on Universal Access – Kick-off Meeting 27/02
• EPF Campaign on Universal Health Coverage
• EPF Campaign on Universal Health Coverage - #Access2030
• EPF Capacity Building during COVID-19
• EPF Capacity Building Module 2019 on Empowering Leadership & Positive Organisational Governance
• EPF Capacity Building Module 2020 on Empowering Leadership & Positive Organisational Governance
• EPF Capacity Building Programme – 18 Polish Patient Organisations Take the First Steps Towards Long-Term Sustainability
• EPF Capacity Building Programme speeds up in Cyprus
• EPF Capacity Building Programme: Slovakia
• EPF Capacity Building Programme: Enabling Leadership and Positive Governance
• EPF Capacity Building Programme: Enabling Leadership and Positive Governance
• EPF Capacity Building Programme: first assessment
• EPF Capacity Building Programme: second phase
• EPF change of legal address
• EPF changes logo
• EPF Conference: How Patients’ and Families’ Involvement can improve Patient Safety
• EPF congratulates new European Commission and emphasises collaborative efforts for patient-centred healthcare
• EPF Congress
• EPF Congress 2019
• EPF Congress 2019 focuses on patient safety – join us!
• EPF Congress 2019: Interview with Adrian van den Hoven
• EPF Congress 2019: Interview with Hans Kluge
• EPF Congress 2019: Interview with Marco Greco
• EPF Congress 2019: Interview with Miklós Szócska
• EPF Congress 2019: Interview with Nathalie Moll
• EPF Congress 2019: Interview with Susanna Palkonen
• EPF Congress 2019: Interview with Usman Khan
• EPF Congress 2019: registration for the first European Congress on patient involvement is now open
• EPF Congress 2019: There’s nothing for patients without patients
• EPF Congress 2021: The Digital Transformation of Healthcare
• EPF Congress 2021: the digital transformation of healthcare - Event recap
• EPF Congress 2022: Continuing the conversation of digital transformation
• EPF Congress 2022: Continuing the Conversation on Digital Transformation
• EPF Congress Presentations
• EPF Congress Q&A with Terje Peetso
• EPF Consultation on eHealth position paper
• EPF Consultation: Have your say on our revised Strategic Plan 2014-2020!
• EPF continues strengthening patient organisations in Hungary and Poland
• EPF Continues Work on Vaccination for Patients with Chronic Conditions
• EPF contributes six amendments to “Safer healthcare in Europe” report
• EPF contributes to a joint event on lay summaries of clinical trials
• EPF contributes to WHO clinical trials reporting statement
• EPF co-signs an open letter to prevent health crisis in Europe
• EPF co-signs contribution to  consultation on cross-border activities of associations
• EPF co-signs joint statement calling for a society-centred EHDS
• EPF co-signs letter mandatory EU Front-of-Pack nutrition labelling system
• EPF co-signs statement supporting Directive 2010/63/EU on the protection of animals used for scientific purposes
• EPF Data Strategy and AI White Paper Consultation
• EPF Elections: New President and New Members!
• EPF e-Newsletter: a new look to better serve our members and allies
• EPF exchanges views on Medical devices with the European Commission
• EPF feedback on the implementing act on joint clinical assessments of medicinal products
• EPF Final Consultation on Defining Access
• EPF gets involved to #KeepAntibioticsWorking
• EPF holds vaccination workshop for Patients with Chronic Conditions in Romania
• EPF initiative on vaccination: progress on shaping the Patient’s Guide
• EPF internal workshop on Clinical Trials Regulation
• EPF invited to participate in EUnetHTA Stakeholder Forum
• EPF is looking for a Membership Officer
• EPF joins a Statement in Support of the NSA Engagement Plan
• EPF joins efforts to combat supply shortages of medicines
• EPF joins European Alliance for Value in Health
• EPF Joins SDG Watch Europe As A Member!
• EPF key role in Patient Safety and Quality of Care
• EPF launches European Elections campaign 2024
• EPF Launches its First Capacity-Building Module in Poland!
• EPF launches survey on access to healthcare: share your experience with us!
• EPF launches toolkit to help patient organisations raise awareness on Antimicrobial Resistance
• EPF Leadership Meeting
• EPF Letter and Recommendations on EU4Health to Permanent Representations to the EU and European Parliament
• EPF liaises with the Council on In Vitro Diagnostics Regulation
• EPF meets with health Commissioner Kyriakides and Commission Vice-President Schinas on pharmaceutical legislation
• EPF member consultation: Clinical trial results – communication of the lay summary
• EPF Members and Networks
• EPF National Coalitions Meeting
• EPF National Coalitions Meeting: Different Perspectives, Similar Goals
• EPF PAG meeting report - 21 November 2017
• EPF paper on clinical nutrition guidelines and summaries for patients
• EPF participated in Open Information Day FP7 Health Research
• EPF participated in the Commission’s exploratory process on medical devices
• EPF participates in EMA’s day on medication errors
• EPF participates in European Commission’s Workshop on Biosimilars
• EPF participates in international effort to assess health systems’ performance from a patient perspective
• EPF participates in international policy symposium “Transforming the medical model”
• EPF participates in WHO meeting on Large Scale Implementation of Health System Transformation
• EPF Patient Advocates’ Seminar - Be an EU lobbyist for a day
• EPF Patient Evidence Workshop focusing on Patient Safety
• EPF Patients' Manifesto
• EPF paves the way for the EU Hungarian Presidency
• EPF perspective on universal access to healthcare
• EPF position on information to patients on food and nutrition
• EPF position on the rights and needs of older patients
• EPF Position Paper on Access from the Patients’ Perspective
• EPF Position paper on eHealth
• EPF position statement EU4Health priorities
• EPF POSITION: In Vitro Diagnostics Regulation
• EPF prepares a position statement on Medical Devices
• EPF prepares for GASTEIN
• EPF prepares recommendations on Data Protection
• EPF prepares recommendations on the rights and needs of older patients
• EPF present at the 4th European Patients’ Rights Day in the European Parliament
• EPF present at the WHO Regional Committee for Europe
• EPF President Anders Olauson to travel to Washington DC
• EPF President appointed expert in the Horizon 2020 advisory groups
• EPF President receives Royal Medal in Sweden
• EPF President selected as patient representative to EMA’s Management Board
• EPF Privacy Policy
• EPF promotes better inclusion of people with chronic conditions in the workplace
• EPF promotes patients interests in mHealth
• EPF proposes a progressive and patient-centred EU4HEALTH programme
• EPF Publications
• EPF publishes a guide for patient organisations on the new Data Protection Regulation
• EPF publishes a position statement on clinical trials
• EPF publishes its position on Data Protection
• EPF Publishes Position Paper on ‘The Value and Pricing of Innovative Medicines’ (01/07/2020)
• EPF publishes position paper on “Adherence and concordance”
• EPF publishes statement on the communication of clinical trial results
• EPF reacts to the European Commission Proposal on transitional provisions under the IVDR and roll-out of EUDAMED
• EPF receives Operating Grant
• EPF receives the Outstanding Contribution to Health Award
• EPF recognised with the 2020 Patient-Centered Health Award at the annual RAPS awards
• EPF recognises young patients on European Patients' Rights Day
• EPF Regional Advocacy Seminar 2016: Patients in the footsteps of Members of the European Parliament
• EPF releases a fundraising toolkit for patient organisations
• EPF Report - Health in the European Semester 2022
• EPF representative elected as new co-chair of Patients’ and Consumers’ Working Party
• EPF represented the patients’ voice at the Parliament
• EPF responded to the Commissions consultation of financial regulation to ensure core funding for patient groups
• EPF responds to EMA's public consultation on electronic medicines information
• EPF responds to public consultation on EMA strategy
• EPF responds to the Commission consultation on European Innovation Partnership – Healthy and Active Ageing
• EPF Responds to the Commission consultation on the Clinical Trials Directive
• EPF responds to the EU Pharmaceutical Strategy Consultation
• EPF response to chronic diseases consultation stresses patients’ central role
• EPF response to the European Commission’s call for feedback on the revision of the EU Pharmaceutical Legislation
• EPF Roadmap to Achieving Universal Health Coverage for All by 2030
• EPF roundtable on cross-border healthcare
• EPF Roundtable Summary
• EPF Seminar Agrees Meaningful Involvement of Patients in Health Technology Assessment Makes a Difference
• EPF shares its insights on the 2017 Country-Specific Recommendations on Health
• EPF signs Dying to work EU Employment Charter
• EPF stands in solidarity with Ukraine
• EPF started new project - Chain Of Trust
• EPF Statement in Response to the Written Consultation on the WHO European Programme of Work
• EPF Statement on EHDS
• EPF Statement on the COVID-19 Pandemic
• EPF Statement: Clarification of The Guardian's article
• EPF statements on COVID19
• EPF Strategic Planning Working Group
• EPF Strategic Planning Working Group
• EPF stresses the importance of patient involvement in healthcare innovation
• EPF strives to make equitable access and universal health coverage a reality
• EPF submits Operating Grant application under EU4Health
• EPF Summer Training Course: Campaigning for Count Us In!
• EPF Support at the Young Coalition for Prevention and Vaccination Manifesto Launch
• EPF Survey - COVID-19 Impact on Patients and Patients’ Organisations
• EPF Survey on corruption and fraud in the healthcare sector
• EPF Survey Results - What Does Quality Care Mean to Patients?
• EPF surveys Patients on their Perception on Quality in Healthcare
• EPF takes #europeforpatients to the European Parliament
• EPF takes a stand on the EU Transparency Directive
• EPF takes a stand on the Professional Qualifications Directive
• EPF task force delivers a roadmap towards inclusion of vulnerable groups’ perspective within patients’ organisations
• EPF Team Update: Au Revoir Laurent; Benvenuta Letizia!
• EPF Team update: Goodbye Véronique, hello Ania!
• EPF to celebrate the European Month of the Brain
• EPF to contribute to the revision of the EU Transparency Directive
• EPF to coordinate major IMI project to create better education/ information tools for patients on pharmaceutical research
• EPF to empower its members’ capacity and advocacy skills
• EPF to set the scene for discussion on patient involvement in HTA
• EPF to voice patients at EFPIA Think Tank event
• EPF turns 20 - Anniversary event
• EPF urges the Council to prioritise discussions on the Medical Devices Regulation
• EPF warns against rushed revision of the EU Medical Devices Regulations
• EPF Webmail
• EPF website accessibility
• EPF welcomes a new project officer!
• EPF welcomes election of Hans Kluge as new Director of the WHO European region!
• EPF welcomes Europe's New Pharmaceutical Strategy
• EPF welcomes new rules on Pharmacovigilance
• EPF welcomes the New Data Protection Agreement
• EPF welcomes the new policy for the release of clinical trial data
• EPF welcomes the proposal for a new EU framework on Clinical Trials
• EPF welcomes the revised Commission proposals on Information to Patients
• EPF welcomes the vote in the European Parliament on the Information to Patients report
• EPF welcomes Wilmott report on clinical trials
• EPF Work on AI
• EPF workplan and annual report now available
• EPF Youth Group (Virtual) Spring Meeting 2020
• EPF Youth Group - How we spent our Summer
• EPF Youth Group - May updates
• EPF Youth Group Fall Meeting – Drawing Priorities and Future Actions
• EPF Youth Group Fall Meeting 2019: Elections and powerful start to a new project
• EPF Youth Group Fall Session in Sofia
• EPF Youth Group looking for new members
• EPF Youth Group Roundtable on Transition to Adult Care
• EPF Youth Group Spring meeting
• EPF Youth Group to shape the EMPATHY project
• EPF Youth Group treads the boards at EPF Congress
• EPF Youth Group welcomes Anna!
• EPF Youth Group: Call for new members!
• EPF Youth Group: New Members, New Ideas!
• EPF Youth Group: WAYS project conclusions and upcoming projects
• EPF Youth Group's Activities in April 2021
• EPF/FPP Conference on the Rights and Needs for Older patients, Warsaw, Poland
• EPF: “Mandatory uptake of HTA joint work is key to ensure more equitable access to healthcare for all patients across the European Union”
• EPF: “No reform of health systems without patients”
• EPF’s advisory role in a new integrated care European project
• EPF’s analysis of the European Parliament reports on the revision of the EU pharmaceutical legislation
• EPF’s Annual General Meeting 2020
• EPF’S ANNUAL GENERAL MEETING 2022
• EPF’s Annual Meeting welcomes six new Members and elects four new Board Members
• EPF’s call for action to ensure patients’ continued access to safe, high-quality medicines across the EU
• EPF’s Capacity Building Programme and Patients Advocates’ Seminar
• EPF’s feedback on the draft Implementing Act for Assessing and Managing Conflict of Interest in HTA
• EPF’s feedback on the Implementing Act on HTA cooperation with EMA
• EPF’s Opinion on extending the mandates of the EMA and the ECDC
• EPF’s plans for the European Health Policy Forum Gastein
• EPF’s position on establishing an opt-out system for the secondary use of health data
• EPF’s reaction to the draft Implementing Act on Joint Scientific Consultations on Medicines
• EPF’s reaction to the European Parliament’s position on the revision of the EU pharmaceutical legislation
• EPF’s response on the European Pillar for Social Rights
• EPF’s Response to the Commission’s Public Consultation on the Cross-Border Healthcare Directive – Evaluating Patients’ Rights
• EPF’s Response to the EU’s Beating Cancer Plan Public Consultation
• EPF’s revised Strategic plan 2014-2020 is now available!
• EPF’s Statement for the European Antibiotic Awareness Day
• EPF’s take on the opportunities and challenges of electronic medicines information
• EPF’s verdict on the Opinion of the Expert Panel on Effective ways of Investing in Health on access to healthcare
• EPF-Medicines for Europe dialogue
• EPF-Medicines for Europe dialogue 2018
• EPF's Annual General Meeting Elects New Board
• EPF's call for action on MDR
• EPF's feedback on joint scientific consultations on medical devices
• EPF's interim evaluation of the EU4Health Programme 2021-2027
• EPF's reaction to pharmaceutical legislation revision
• EPF's reaction to the draft reports on the revision of EU pharmaceutical legislation
• EPF's reaction to the European Parliament’s adoption of the European Health Data Space report
• EPF's reaction to the proposed amendments of the Medical Devices Regulation
• EPF's recommendations on the eu4health programme
• EPF's Response to the Commission Public Consultation on the Clinical Trials Directive
• EPF's statement on AMR Council Recommendation
• EPF's survey on the implementation of the EU Medical Devices Regulations
• EPIK - Estonian Chamber of Disabled People
• Equal treatment of patients in education and the workplace
• Erato Markantoni
• Eric Moris
• Erin Davies
• ESAIC seeks 2 patient representatives for guidelines on patient safety
• Estefanía Callejas De Luca
• Ethics Committee
• eTRIKS project on the use of research data is looking for patients’ views!
• EU Adopts Legislation on Organ Transplantation
• EU Budget: we want an ambitious EU health policy with patients at its centre
• EU Cloud in Health Council and EPF Workshop – 8 May 2017, Brussels
• EU Elections campaign 2024
• EU Health Policy Platform: Call to Action on Migration and Health!
• EU Health programme 2014-2020
• EU Health Programme: the list of National Focal Points is updated
• EU JA CHRODIS General Assembly: Achievements & Next Steps
• EU Legislation ON AI
• EU Level
• EU Party Manifestos
• EU patient task force on nutrition
• EU PEARL Project now on EPF website
• EU PEARL: A plan to foster patient engagement gets off the ground
• EU Public Consultation on the Commission’s ‘Beating Cancer Plan’
• EU to grant extra time for implementation MDR
• EU4Health Civil Society Alliance concerned about the role of health in the next commission mandate
• EU4Health Civil Society Alliance Joint Position Paper
• EU4Health Civil Society Alliance: How to harvest long-term health benefits of the EU4Health programme?
• EU4Health programme enters into force
• EU4Nutrition Live: Nutrition, Cancer and COVID
• EUCAPA
• EUFAMI - European Federation of Associations of Families of People with Mental Illness
• EUnetHTA Collaboration
• EUNetPaS
• EUPATI
• EUPATI
• EUPATI – activities for 2020-2025
• EUPATI Expert Training Course for Patients
• EUPATI Fundamentals – Training on Patient Engagement for Academy and Pharmaceutical professionals available!
• EUPATI Graduation Ceremony & Final Conference
• EUPATI Graduation Ceremony took place on 31 January: more than 50 EUPATI Fellows graduated!
• EUPATI Guidance on Patient Involvement in HTA published in Peer-Reviewed Journal
• EUPATI Is Going Global – New Partnership In Brazil
• EUPATI is ready to launch a brand new industry training
• EUPATI launched its first training on patient engagement to professionals
• EUPATI launches its new Open Classroom e-learning platform
• EUPATI National Platform launched in Spain
• EUPATI Network of National Platforms – Annual General Meeting
• EUPATI project looks to the future
• EUPATI project publishes draft training programme syllabus
• EUPATI reaches 1 million users
• EUPATI Report from July's event & expert programme
• EUPATI Strengthens Its Network Through Two Important Events
• EUPATI Training Course: Second face-to-face training
• EUPATI Training: tailoring the Expert Training Course according to new demands
• EUPATI Update: Patient involvement in medical technology research and development
• EUPATI: an IMI recently-launched Patient Academy
• EUPATI: Final Conference and Change in Sight
• EUPATI: Guidelines on Patient Involvement in Medicines’ Development
• EUPATI: second Expert Training Course and local activities
• EUPATI: Second Face-to-Face Training Barcelona
• EUPATI: your health, your knowledge
• EUPATI’s main achievements in 2018
• EU-PEARL
• Europa UOMO
• EUROPA UOMO joins EPF
• EUROPADONNA - European Breast Cancer Coalition
• Europe meets young patients in July
• Europe Men’s Health Week focused on primary care
• European Commission event: Mental health and the pandemic: living, caring, acting!
• European Commission publishes reports on Patient Safety
• European Commission: Pharmaceutical and Medical Devices policies remain in the health portfolio
• European Commission's health recommendations to 12 EU countries once again broad and vague but a step in the right direction
• European Elections 2019
• European guidelines on early cleft care adopted this February
• European health community says don’t let a no-deal Brexit put patients across Europe in danger
• European Health Forum Gastein 2016
• European Health Forum Gastein 2017: A Better Future For Patients?
• European Health Forum in Gastein
• European Health Parliament: closing plenary session
• European Health Parliament: Meet Healthcare’s New Young Heroes
• European Health Policy Forum focuses on research priorities and investing in Health
• European health policy should be more than mitigating the effects of the single market
• European Kidney Forum 2019 – Event report
• European Medicines' Agency launches new PRIME (PRIority MEdicines) scheme
• European Medicines Agency Public consultation on the revision of the EudraVigilance Access Policy
• European Medicines' Agency: latest news on medication errors
• European Medicines Agency: Workshop on Information about Medicines
• European Network for Patients Empowerment
• European Network for Patients Empowerment
• European Ombudsman Inquiry on EMA pre-submission activities: EPF's response
• European Parliament Elections campaign's next steps
• European Parliament officially adopts the report on Medical Devices
• European Parliament Report on Access to Medicines
• European Patients' Academy - Join the EUPATI Network!
• European Patients’ Academy: up, running and real
• European Patients’ Forum Calls on New MEPs to Prioritise Health in the EU Agenda
• European Patients’ Rights Day 2021
• European Pillar of Social Rights: Patients’ Concerns Matter!
• European policymakers must commit to putting patients’ health priorities at the heart of the political agenda for the next five years
• European Reference Network for Rare Eye Disease
• European Semester and Country Specific Recommendations: have your say!
• European Summit on Hospital Pharmacy
• EUROPSO - European Umbrella Organisation for Psoriasis Movements
• EURORDIS - European Organisation for Rare Diseases
• EURORDIS Winter School – International collaboration in the field of scientific innovations and translational research (EPF Youth Group)
• EuroSafe Imaging Campaign Towards Patient Safety
• Evaluating the Cross-Border Healthcare Directive (Joint Webinar DG Sante & EPF) – Major takeaways from the virtual event
• Evaluating the Cross-Border Healthcare Directive: have patients’ rights improved a decade on?
• Evaluating the Cross-Border Healthcare Directive: have patients’ rights improved a decade on?
• Evaluation
• Event Reports
• Events
• Events
• Events
• Every Day Should Be Antibiotic Awareness Day
• Experts Discussed Future Reforms of Healthcare in Greece
• Exploring Patient Involvement in Continuing Professional Education
• External Resources
• EYE Strasbourg 2016

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• Facing together the impact of chronic diseases: Chrodis-Plus starts working on implementation projects
• Factsheet on Roadmap for Universal Health Coverage now available in several EU languages!(2)
• Factsheets
• Fall Meeting 2020 – another productive meeting for the EPF Youth Group
• Falsified medicines
• Falsified medicines – new EU rules come into application
• FE - Fertility Europe
• February 2014
• February 2015
• February 2016 – EPF a Solid Partner in European Projects
• February 2017 – Official Opening of the #Access2030 Campaign
• FEP - Spanish Patients' Forum
• FESCA- Federation of European Scleroderma Associations
• FH Awareness Day
• FH Europe foundation
• FH Europe joins EPF
• Fifth EPF regional Advocacy Seminar report out!
• Fighting Alzheimer’s disease and dementia together
• Final consultation on discrimination in education and the workplace
• Final consultation on the EPF eHealth position paper
• Final report to close Chain of Trust project
• Finance & Transparency
• Financial statement 2023
• Financial Support
• First conference on the patients’ perspective on nutrition
• First EMA Workshop on Health Literacy! Impact on Risk Communication
• First face-to-face meeting for EUPATI ‘students’
• First phase of data collection complete
• First translations of the Value+ toolkit is now available to download
• Five questions to the Flemish Patients Platform
• Five tips if you are starting your new job remotely
• Flavia Topan
• Follow us and make THE patients’ voice loud!
• Fourth Regional Conference on Cross-Border Healthcare
• FPP - Federation of Polish Patients
• French citizens’ views on the Cross-Border healthcare Directive
• French civil society adds its voice to the debate on medicine prices
• Full Members
• Funding opportunities: have you thought of the EEA and Norway Grants?
• Future European cooperation on HTA: a step forward in improving healthcare for all
• Future healthcare models need to incorporate patients
• Future of the European Health Union

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• Gabriela Tanasan
• GAMIAN-Europe - Global Alliance of Mental Illness Advocacy Networks
• Get breathless for Pulmonary Hypertension
• Get involved in optimal patient blood management!
• Get involved in the European Antibiotic Awareness Day 2016!
• Get ready for the consultation on the next Health programme!
• Get to know the work of the European Medicines Agency through the "EMA Basics"!
• Get Your Belly Out for Crohns and Colitis!
• Getting the Message to MEPs: Charter on Patient Empowerment
• Give us a Hand: EPF New Video for Stronger Ties with MEPs
• Give your input on pharmaceuticals in the environment!
• Global Heart Hub
• Global Heart Hub joins EPF
• Global Heart Hub's Unite Summit
• Global Skin
• GlobalSkin joins EPF
• Good bye Özgün Ünver!
• Good Governance in the Pharmaceutical Sector
• Good practices on patient empowerment to inspire our “5 Es” campaign!
• Goodbye and see you soon!
• Goodbye and stay in touch!
• Governance
• Gözde Susuzlu Briggs
• Gravitate Health
• Greek Patients Association
• Guide
• Guides and tools developed by patient organisations (for employers and patients)
• Guiding Principles for ethics and tranparency

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• H2O
• Happy 10th Anniversary to the Spanish Patients’ Forum!
• Happy 2023 from EPF President Marco Greco
• Has your doctor washed his hands before touching you?
• Have a say on the EPF position on the cross-border healthcare directive
• Have you participated in a clinical trial? EU PEARL wants to hear from you
• Have your say and contribute to better patient safety!
• Have your say on the Digital Transformation in Health!
• Have your say on vaccines!
• Health actors write to Barroso proposing stronger health dimension
• Health and safety at work: new strategic framework
• Health and Social Care Alliance Scotland - The Alliance
• Health and the life continuum from a gender perspective
• Health deserves more, not less spending!
• Health groups call for accelerated spina bifida and hydrocephalus prevention and care worldwide
• Health in the new European Commission
• Health Industry Leaders respond to EPF's Open Memo on COVID-19
• Health Interest Groups in the new European Parliament
• Health Literacy
• Health Research Charities Ireland
• Health technologies should remain in the Health portfolio
• Health Technology Assessment
• Health Technology Assessment sans frontières
• Health Technology Assessment seminar report available online
• Health Technology Assessment: How patients can be involved?
• Health Workforce
• Healthcare for persons with disabilities: home and abroad
• Healthcare in the EU: three independent expert opinions – what’s in it for patients?
• Healthcare-associated infections: a threat to public health
• Hello Brendan, Goodbye Danielle!
• Hello Mathieu, Goodbye Stefano!
• Help us shape transparency guidelines for EPF and patient organisations!
• Help us to collect wider support for the MEPs' Statement on #EU4Health!
• Helping Europe’s carers of people with Parkinson’s is a “public health emergency”
• HERA should serve patients and promote public health: a shared vision for the EU’s new Authority
• HEU-EFS
• High time for enhanced European coordination and competence on health
• High-level Policy Roundtable - “Making Empowerment a Reality: Patients as Partners”
• High-level policy roundtable: “Making Empowerment a Reality: Patients as Partners”
• Historical context
• HIVE-33 Webinar Mini Series - Episode 1
• HONcode Certification
• Honorary President
• Horizon Europe must invest more in health to support high-quality, accessible and equitable health systems
• Horizon Europe must invest more in health to support high-quality, accessible and equitable health systems
• How can the EU #makeworkwork for young people with chronic conditions?
• How can we resource patient organisations in times of austerity?
• How chronic conditions complicate my social ventures
• How much data protection does a patient get?
• How Sex and Gender Impact the Health of Women and Men
• How Social Media Impact Medicines-Related Behaviour: EMA Workshop
• How to create better Patient Information Leaflets for patients?
• How to Engage - Toolkit
• How to engage in the campaign
• How to engage in the campaign?
• How to strengthen the patients’ perspective at EU and national level?
• HTA – Public consultation on strengthening EU cooperation on Health Technology Assessment
• HTA Seminar 2010 Presentations
• HTA: Advancing Towards EU Collaboration
• HTA: Improvements in Parliament but Still More Work to do
• HTA: our position statement
• HTAi Annual Meeting 2018: Patients Included
• HTAi Conference: Towards a Globalised Approach and Patient Involvement
• Huge Success For EUPATI Face-To-Face Training!
• Hungarian Alliance of Patients' Organisations
• Hungarian Osteoporosis Patient Association (HOPA)
• Hungary

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• IBE - International Bureau for Epilepsy
• ICHOM: What matters most when it comes to your health?
• IDERHA
• IDF Europe - International Diabetes Federation European Region
• IDF Europe - Position Paper on Vaccination of People living with Diabetes
• IF - International Federation for Spina Bifida and Hydrocephalus
• IMI project IMMUCan has kicked off!
• IMI Workshop on how to foster patient engagement in medicines’ Research and Development (R&D)
• IMI-EFOEUPATI - Ensuring the Future Of EUPATI
• IMMUcan
• Impact Reports
• In memory of Pedro Montellano
• Inauguration of EATRIS-Plus Project in Personalised Medicine
• Increased transparency of clinical trial data
• Info Day: Horizon 2020 - 'Health, demographic change and wellbeing'
• Informal MEP discussion on Equity of Access to Quality Healthcare
• Informal Survey on Medical Packaging and Patients
• Information for Patients
• Informed patients can help prevent medication errors
• Innovative Medicines Initiative to launch new call on patient engagement
• Integrated Care Conference: Patients as Central Partners
• Interesting reads
• International Conference on Integrated Care (Barcelona, 23-25 May 2016)
• International Diabetes Federation Europe in the spotlight
• International Experience Exchange with Patient Organisations (EPF Youth Group)
• International Women’s Day 2021: Achieving an equal future in a COVID-19 world
• International Women's Day
• InterQuality
• InterQuality: projects’ outcomes now on video!
• InterQuality: smarter financing, improved quality for patients
• Introducing Cystic Fibrosis Europe
• Introducing the Netherlands Patient Federation (Patiëntenfederatie, Nederland)
• Investment in Health set as a priority in the Social Investment Package
• Invitation - Conference on the Economics of Chronic Diseases
• Invitation - EARIP Stakeholders' Workshop
• Invitation - ESMO PAWG Workshop on Cancer Patient Advocacy Networks Driving Research
• Invitation - Forum Better research for better health - A holistic approach to challenges & opportunities (21 January 2016)
• Invitation - Universal Access to Health
• Invitation to participate in the upcoming “eTRIKS Play Decide" Event
• Invitation to the First Joint Patient- Healthcare Industry Dialogue Meeting
• Involving patients in the development and review of lay summaries: new guidance to be published in 2020
• IOF - International Osteoporosis Foundation
• IOF Worldwide Conference
• IPOPI - International Patient Organisation for Primary Immunodeficiencies
• Is a Positive Work Environment exaggerated or underestimated?
• Is your patient organisation concerned about Brexit? It should be!
• Isabel Proaño Gómez
• ISPOR Europe 2018 Conference highlights the importance of meaningful patient engagement

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• JA CHRODIS Final Conference - New Initiative Coming Up!
• JA-cHRODIS
• JA-CHRODIS webinar on the CHRODIS platform
• January 2014
• January 2015
• January 2016 - Our Members, Our Compass
• January 2017 – Our Members, Our Compass!
• Job offer: Membership Officer
• Job opening - EPF Youth Intern
• Job Openings
• Job Opportunity: Events, membership and administration Officer at EUFAMI
• Job opportunity: will you be our new Communications Manager?
• Join EPF Educational Workshop on Pharmaceutical Incentives!
• Join us!
• Joint action on chronic diseases approved
• Joint Action on Patient Safety and Quality of Care
• Joint DIA/EMA/EFGCP Children’s Medicines Conference 2016
• Joint letter by EPHA and EPF on the Future EU Public Health Programme
• Joint letter on EU4Health budget cuts
• Joint statement – Operating Grants for health NGOs
• Joint Statement: Europe, Let's Do More for Health!
• Juan Fuertes
• Julie Spony
• July 2014
• July 2015
• July 2016 – EPF Capacity Building Programme Supporting Patients’ Organisations
• July 2017 – A Memorable Year for Our Youth-Related Activities!
• July issue of EPF mailing is now available
• June 2014
• June 2015
• June 2016 – EPF Patient Empowerment Campaign
• June 2017 – Patient Organisations as Legitimate Stakeholders in Civil Dialogue
• Just a Few Days Before our 1st Summer Training Course for Young Patients Advocates!

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• Kaisa Immonen
• KBF Focus: Strengthening patients’ voices in the debate on AI in healthcare
• Key Answers from Shot Callers Part 2: A Virtual Discussion on COVID-19 Vaccines
• Kick Off Meeting of The CHRODIS Plus Joint Action: It’s Time To Implement
• Kick-off of the Joint Action on Patient Safety and Quality of Care
• Klaudia Cymer
• Konstantina Boumaki
• Konstantina Boumaki
• KUZ - Coalition of Association in Healthcare (Croatia)
• KZZ - Confederation of Health Protections

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• Label2Enable
• Lack of patient involvement in the Council position on medical devices
• Last run up to the 2014 EU Elections!
• Latest developments on EPF's response to the Pharmaceutical Package
• Latest EPF News
• Latest EPF’s participation at policy and stakeholder events – A recap
• Latest Plenary Vote on EU4Health
• Launch of EPF New Website
• Launch of the EPF AI Knowledge Hub
• Launch of the Euro Hepatitis Care Index
• launch of the first EHDEN Academy Patient & Patient Group Course
• Launch of the first Patient Expert Training Course
• Launch of the Impact Report 2021
• Launch of the Joint Action on Chronic Diseases
• Launch of the MEP Access to Healthcare Interest Group
• Launch of the Second Cycle of the EUPATI Patient Expert Training Course! (Deadline: 31 March 2015)
• Launch of the Under Pressure website
• Laura Henderson
• Leaflets
• Learning from the experience of involving patients
• Legislation summary - How is discrimination addressed in EU legislation?
• Let people know your organisation is a member of EPF!
• Let’s Campaign for Patient Empowerment!
• Let’s celebrate our 10th Anniversary!
• Let’s Talk About Access: Take On Our New Survey!
• Let's Kick Lupus Out!
• Letter to EU Commissioner for Health and Food Safety Stella Kyriakides
• Library
• Lifting patient voices as partners
• Limited resources versus patients’ need: How to prioritise?
• Links
• Liver Cancer Awareness Month
• Logo
• Long-term Access to Quality Healthcare in Europe
• Looking at Health Literacy and Self-Care with our Spanish Coalition
• Looking for testimonials of patients with multimorbidities
• Lost about the Data Protection Regulation? Read our EPF briefing
• LPOAT - Council of Representatives of Patients’ organizations (Lithuania)
• LPOT
• LSE Survey on patients' and their caregivers' perceptions of health
• LUCE - Lung Cancer Europe
• LUPUS Europe

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• Mailing subscription
• Making Meaningful Patient Engagement in Translational Research the New Normal – EATRIS-Plus at PEOF 2022
• Making sure that Europe's 'Beating Cancer Plan' works for patients
• Making the Invisible Visible – World IBD Day 2019
• Management of chronic diseases: the potential of patient empowerment
• Manifesto “150 Million Reasons to Act”
• Manifesto for the 2014 EU Elections
• Manifesto in all EU languages
• Manuel Arellano
• March 2014
• March 2015
• March 2016 – New President and New Board!
• March 2017 – EUPATI Moves Forward Under EPF Direction
• Marco Greco
• Marco Greco, EPF President, reappointed for another term on the EMA Board
• Marleen Sorensen
• Marzena Nelken
• Master in International Patient Advocacy Management
• Mateja Kržan
• Materials
• May 2014
• May 2015
• May 2016 – EPF Youth Group: Preparing Patient Advocacy for Tomorrow!
• May 2017 – EPF Calls for Meaningful Patient Involvement in EU Health Policy Dossiers
• Meaningful involvement of patients in the European Health Data Space is fundamental
• Measuring Impact in patient-centered drug development conference
• Measuring Patient-Centred Health Outcomes: An Indispensable Tool To Improve Health Systems
• Medical Devices
• Medical Devices Regulation Now Officially Published
• Meet Anca Toma, EPF’s new Executive Director
• Meet the 5 Champion MEPs of the #Access2030 Campaign!
• Meet the New EUPATI Management Team!
• Meet the newest member of the EPF Youth Group!
• Member consultation on discrimination in healthcare: your input needed
• Members
• Mental Health A Key Factor To Active and Healthy Ageing
• Mental Health Europe (MHE-SME)
• Mental Health Europe in the spotlight
• Mental Health Europe is recruiting a Communications and fundraising officer
• MEP Dalli: “In the Context of Universal Health Coverage, the EU Should Not Be Explaining but Reacting”
• MEP Interest Group on Antimicrobial Resistance Official Launch Event
• MEP Interest Group on Brain, Mind and Pain launches its new Book of Evidence
• MEP Konečná: ‘We need a fundamental shift in the way health services are funded, managed and delivered’
• MEP Kovatchev speaks out on access to healthcare
• MEP Pedicini: “Patients play a pivotal role in the prevention of HAI”
• MEP Pietikainen: ‘Only A Long-Term Vision Can Ensure Sustainable Investment in Health’
• MEP Rübig: ‘We Need a Framework Enabling Member States to Provide the Best Healthcare’
• MHE: The Future of Mental Health, Rights and Recovery in Europe
• MHN - Malta Health Network
• Michal Rataj
• Michal Rataj
• Milana Trucl
• Modernising Professional Qualifications Directive: EPF responds to the second Commission consultation, and issues a joint statement with EPHA, EWL, and BEUC
• Modules
• More investment needed with one year to go to restore the trust and confidence of patients and the public in the regulation of medical devices in the EU
• More investment needed with one year to go to restore the trust and confidence of patients and the public in the regulation of medical devices in the EU
• More patient involvement in patient safety
• More patient involvement needed in Health Technology Assessment
• More patients’ involvement in the medical devices world
• Multistakeholder Roundtable on “Inclusion of People with Chronic Conditions in the Workplace and Combatting Discrimination” - event report
• Multi-Stakeholder Workshop on Communicating Clinical Trial Results to Meet Public Needs
• My experience at the European Health Forum Gastein

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• NAPO - National Association of Patients' Organizations
• NCDP – National Confederation of Disabled People of Greece
• Neurological Patients’ Struggle to Get Back to Work
• New black triangle symbol for medicines subject to additional monitoring
• New Board and Members!
• New Board, New member!
• New call for project proposals!
• New calls for tender
• New developments in cross-border healthcare directive
• New EPF Board Member Hilkka Kärkkäinen: Mental Health is as Important as Physical Health
• New initiatives in the area of digital health
• New Innovative Medicine Initiative (IMI) call – Patient Inspired Knowledge HUB
• New Leadership at the European Patients’ Forum Secretariat
• New logo for online shop selling medicines
• New logo for online shop selling medicines
• New MEP Interest Group on Brain, Mind and Pain
• New policy for release of clinical trial data
• NEW READ: survey results on The Welfare of Patients with Chronic Diseases during COVID-19
• New recorded webinars available
• New results of the EURORDIS Rare Barometer survey on patients’ preference on rare disease data sharing and protection published
• New Roadmap Initiative tackles practical challenges of creating lay summaries of clinical trial results
• New steps regarding the Patient-MedTech Dialogue
• New Synergy under EPF Roof
• New temporary Commissioner for health
• New tool facilitates better diagnosis of Parkinson’s disease in clinical settings
• New vacancy: Youth Trainee!
• New version of EudraCT Database: A step forward for greater transparency
• New webinar series: Amplifying patient advocacy on Antimicrobial Resistance (AMR)
• New website for IMI project EHDEN (Electronic Health Data and Evidence Network)
• New website for the PaSQ Joint Action!
• New! Blog article: Bulgarian Children Battle for Treatment
• News
• News Archive
• Newsletter
• Newsletter
• Nikos Dedes
• No Patient Safety without Patient Involvement – EPF Conference
• Non-discrimination
• Nordic Meeting for Primary Immunodeficiency: the shortage of immunoglobulins is a global problem
• Note from the EPF President
• Novel solutions? Yes, but only with patients
• November – EPF Supporting Patient Organisations in Europe
• November 2014
• November 2015
• November 2016 – New Campaign on Access, A Priority for European Patients
• Now is the Time to Protect Patients and Safeguard Access to Care
• Now it is the time for active citizenship!
• NPO - National Patients' Organisation (Bulgaria)
• Nutrition
• Nutrition is an integral part of disease management
• Nutrition: From Bare Necessity to Essential Component of Disease Management

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• October 2014
• October 2015
• October 2016 – EPF’s Blog, our Window for External Contributions
• October 2017 – European Health Parliament: Meet Healthcare’s New Young Heroes
• OECD – PaRIS international survey tender is out & new Patient Safety working group looking for patient representatives
• OECD Paris Initiative: Assessing Health Systems Through the Patient’s Eyes
• OECD public consultation on access to innovative medicines
• OECD Survey: questions addressing patient reported experiences on safety
• On the Commission’s Digital Health Plans
• on the EU4Health Trilogues
• One year of EU collaboration on chronic diseases
• Ongoing Projects
• Online Event: Lessons learnt from the COVID-19 pandemic and future of HTA collaboration at EU level
• Only Patient-Centred Solutions Can Ensure eHealth Brings Benefits For Patients
• OP-ED | Julie Spony on "Supporting patient-centred innovation: the value of patient experience data"
• Open Consultation: HTA and Payers’ Use of Real-World Evidence in Decision-Making on Highly Innovative Technologies
• Open letter from patients and doctors to EU Health Ministers
• Opinion on "access to health services in the EU"
• Other pages
• Other Resources
• Our Capacity Building Programme in Hungary Advances!
• Our European Members trained to raise funds to become strong advocates
• Our Members' Campaigns
• Our members in the spotlight: BAPD
• Our members in the spotlight: EFA
• Our members in the spotlight: European Multiple Sclerosis Platform
• Our members in the spotlight: Le Ciss
• Our members in the spotlight: Pancyprian Federation of Patients’ Associations and Friends
• Our members react to the mid-term review of the EU Disability Strategy
• Our new Capacity Building Module on Empowering Leadership and Positive Governance
• Our New Youth Group Members 2021
• Our position on In Vitro Diagnostic devices’ review is out
• Our position to promote ‘Healthcare for all’
• Our recommendations on medical devices for the Council
• Our Roadmap for Sharing Clinical Trial Data
• Our verdict on the Council position on medical devices
• Our working group tackles the access to healthcare issue
• Overview of the Capacity Building Programme (CBP) in 2016/2017

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• Pandemic Anniversary
• PARADIGM
• PARADIGM presents PE Toolbox and Monitoring and Evaluation Framework
• PARADIGM project: 7 months til the end. Are we on track?
• PARADIGM Survey: tell us what YOU expect from patient engagement
• Paradigm: a unique collaboration for better patient engagement in medicines development
• PARADIGM: turning patient engagement into reality one year on
• Parkinson's EUROPE
• Participate to the European Antibiotic Awareness Day 2015!
• Partnerships
• PASQ JA
• PaSQ project continues for one more year!
• PASQ project: focus on patient involvement and empowerment
• Past consultations
• Patient Access Partnership
• Patient Advocates Seminar 2021
• Patient Advocates Seminar 2021 - Testimonials
• Patient Empowerment
• Patient Empowerment Campaign
• Patient Empowerment Campaign: Closing Exhibition Framed High-Level Commitments
• Patient Empowerment Charter: 10 Fundamental Principles
• Patient Empowerment from the perspective of a young person
• Patient engagement as a de-risking element of medicine development
• Patient engagement recognised by EURORDIS Black Pearl Company Award
• Patient involvement a weak area in patient safety
• Patient involvement improves the outcome of a procurement process
• Patient involvement in EU innovative research for chronic diseases
• Patient involvement in Health Technology Assessment in Europe - An interim report on EPF survey with HTA Agencies
• Patient Involvement Matters for Health Economics
• Patient Link Workshop: High Impact Patient Advocacy
• Patient MedTech Dialogue meeting
• Patient MedTech Dialogue Workshop - ‘How can community care ensure equal and broad patient access to medical technologies?’
• Patient MedTech Dialogue Workshop on ‘HTA and Medical Technologies’
• Patient MedTech Dialogue Workshop on Access to Healthcare and the EPF’s Campaign
• Patient MedTech Dialogue Workshop on the new Medical Device and In-vitro Diagnostics Regulations
• Patient MedTech Dialogue Workshop on the Regulations on medical devices
• Patient organisations and Pharmacovigilance: are you involved? Let us know!
• Patient organisations have a role to play in fighting antibiotic resistance
• Patient Organisations Have Co-signed a Joint Statement on HTA
• Patient Organisations: the Untapped Potential of the Healthcare System
• Patient organisations’ initiatives
• Patient Perspectives
• Patient representatives from musculoskeletal / orthopaedic conditions sought to participate in new patient safety initiative on implantable medical devices
• Patient Safety
• Patient Safety at the heart of EPF’s activities
• Patient Safety Briefing Paper – “Everyone’s Business”
• Patient Safety Survey remains open until 30 April 2013!
• Patiëntenfederatie Nederland - National Coalition of Dutch Patients
• Patient-Medtech Dialogue Workshop “Patient Involvement in the Lifecycle of Medical Devices”
• Patient-MedTech Dialogue Workshops
• Patient-MedTech Dialogue Workshops: Reports now available!
• Patients & Decision-Makers Get Together in Kosovo to Address Patients’ Rights in the Region
• Patients and Discrimination: why it’s time to get involved?
• Patients at the European Congress of Radiology
• Patients at the Workplace
• Patients Campaign at the European Parliament
• Patients campaign on Data Protection
• Patients discuss the cross-border healthcare directive - Summary Report of the EPF Regional Conferences
• Patients highlights at the We Care final conference
• Patients in favour of health records access
• Patients in Health in the next mandate
• Patients in the Spotlight - Issue #1
• Patients in the Spotlight - Issue #2
• Patients need to be at the centre of digital transformation of health and care
• Patients play a key role in sustainability and cost effectiveness strategies
• Patients played a key role at DIA Europe Meeting
• Patients Rights Day
• Patients voice their position on Medical Devices
• Patients’ Academy: many views, varied ideas, one vision
• Patients’ concerns with COVID19 must be urgently addressed and voiced to Member States, says EU Commissioner Kyriakides
• Patients’ empowerment to shape the future of healthcare
• Patients’ engagement in the production health innovation
• Patients’ involvement in EMA’s activities in 2011
• Patients’ Opinion: a Prerequisite to any Debate on Access
• Patients’ representatives sharing learning and good practice
• Patients’ Rights and Safety EPF Working Groups Move Forward
• Patients’ rights in cross-border healthcare soon implemented
• Patients’ role in Coordinated and Integrated Health Services Delivery
• Patients’ safety must take precedence in EU coronavirus vaccination deals
• Patients’ safety must take precedence in EU coronavirus vaccination deals
• Patients’ voice heard at the Horatio Festival on Psychiatric Nursing
• PDF
• PEDRO CARRASCAL RUEDA
• Pedro Montellano
• Peer Leadership and Co-Production: Developing a Collective Approach
• Peer-Reviewed EUPATI Guidance on Patient Involvement in Regulatory Processes published in Frontiers in Medicine
• Peer-Reviewed EUPATI Guidance published in Frontiers in Medicine
• PERISCOPE
• PERMIT
• Personalised medicine
• PHA Europe - Pulmonary Hypertension Association Europe
• PHA Europe campaign on Organ Donation and Transplantation
• Pharmaceutical Forum
• Pharmacists and patients: could we do more?
• Pharmacovigilance
• PharmaLedger
• Pilot Cross-Border eHealth Project Shows Promise for Real-Life Impact
• PiSCE
• PISCE Final conference – Cultural Barriers Still A Big Obstacle to Self-Care
• PISCE: EPF joins the platform of Experts of the self-care tender
• Plataforma de Organizaciones de Patientes
• Platform on Transparency and Ethics: the Guiding principles are on-going
• Poland
• Policy
• Policy & Research
• Policy Advisory Group
• Policy Topics
• Policymakers support EPDA’s Consensus Statement
• POLITICO Health Care Summit
• Portuguese Parliament supports patients’ initiative on public participation in health
• Position paper on Adherence and Concordance - Final round of consultations (Deadline 12 March 2015)
• Position Papers & Briefings
• Positive Dutch decision on Pompe and Fabry disease treatments
• Positive move towards a more patient-centred clinical trials EU framework
• Positive outcomes of EPF Capacity Building Programme in Romania
• Postponement of the Application of the Medical Devices Regulation
• PREFER
• PREFER: New Project on Eliciting Patients’ Preferences in Benefit Risks Assessment
• Preparing the EU for Digital Health
• Presentations - Conference on Rights and Needs for Older Patients 2011
• Presentations available from EPF's autumn regional seminar
• Press Release: EPF’s Verdict - Cross-Border Healthcare
• Press Release: Is cross-border healthcare working for patients accross the EU?
• Press Releases
• Press statement on Medical Devices Regulation
• Pricing & Reimbursement
• Priorities for future European public health research
• Professional Qualification Directive: EPF responds to the Commission consultation, and issues a Joint Statement with EPHA
• Professional Qualifications Directive: MEPs’ reports support EPF key points
• Profit and Loss account - 2007-2008
• Progress during STYPA 2021
• Projects
• PROPHET
• PRO-STEP
• PRO-STEP Final Conference
• PRO-STEP Final Conference – Sharing Results On Self-Management In Patients With Chronic Conditions
• PRO-STEP Final Conference: Sharing Results on Self-Management in Patients with Chronic Conditions
• Provisional Agreement on EHDS
• Provisional Members
• Public consultation on EU draft guideline for the lay summary of clinical trial results
• Public consultation on strengthening EU cooperation on HTA
• Publication Draft Minutes of EPF's 2016 Annual General Meeting
• Publications & Resources
• Putting patients in the driving seat in future digital healthcare

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• Q&A: David Somekh, Network Director EHFF and member of the CEMPaC Board
• Q&A: Fanni-Laura Mäntylä – Chair of Mental Health & Healthy Workforce Committee for the European Health Parliament (EHP)
• Quality of Care

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• R&I opportunities
• Radu Costin Ganescu
• Rais Fundación International Conference: Homelessness and Access to Health
• Raising awareness for the Inflammatory Bowel Disease
• Rare Disease Day
• Recap of the VAC-PACT Regional Workshops
• Recent News on EU Developments on Biosimilars
• Recipes for a Healthier Europe by the new Commission President-elect?
• Reflections on STYPA 2022
• Register for EPF webinar on medical devices!
• Register now! Patient-MedTech Dialogue (22 September)
• Registration Now Open for EPF Congress 2021
• Regulation on In Vitro Diagnostic Medical Devices- EPF’s Verdict
• Re-Launch of MEP Interest Group on Access to Healthcare
• RENEWING HeALTH
• RENEWING Health: EPF to explore the perspective of telemedecine end users
• Report “Redesigning health in Europe for 2020”
• Report from Gastein 2013's session on Patient Involvement
• Report from the EU Summit on Chronic Diseases
• Report from the EUPATI annual conference
• Report from the European Communication Summit's Health Working Group
• Report of EPF Patient Safety Conference Now Available!
• Report of our Annual General Meeting
• Report on ‘EU Patient groups & the relevance of nutrition’
• Report on multiple discrimination in access and quality of healthcare
• Report on the European Health Policy Forum Gastein
• Report on the outcomes of EPF's workshop on health and cohesion policy now available
• Report out on Clostridium Difficile infections
• Reports
• Research from the Field
• RESPECT
• Response to the European Commission's call for feedback on the European Health Data Space
• Results of the EHDEN COVID-19 Rapid Collaboration call
• Results of the WE-CARE project
• Reviewing the Quality Principles for Info to Patients
• RI - Retina International
• Riga Health Conference 2015 - A few places available!
• Riga Roadmap published – key recommendations for patients’ participation
• Rising inequalities and harassment as fundamental rights protection falters
• Roadmap for Action
• Robert Andrew Johnstone
• Role-Players: The importance of patients in co-designing Europe’s future health system
• Romania
• Romania celebrated the patients’ week
• Romanian Patients tackle the access to healthcare issue
• Ruth Tchaparian

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• SAFE introduces Stroke Support Organisation Faculty Tool
• Safe Motherhood Week
• Safer and More Controlled Devices: A Victory for Patient Safety
• Salzburg Global Seminar 2017: Toward a Shared Culture of Health
• Save the Date - "Sustainable Health Systems through Evidence-based Guidelines on Improving Health Literacy"
• SAVE THE DATE - EPF CONGRESS 2021: THE DIGITAL TRANSFORMATION OF HEALTHCARE
• SAVE THE DATE - EPF Patient Empowerment Campaign Closing Event
• Save the Date - Joint EFGCP-MedTech Europe Working Party
• Save the date for our 10th Anniversary celebration and Annual General Meeting!
• SAVE THE DATE! EPF to host a high level policy event in october
• Say Hello to Our Three New Colleagues!
• Season's Greetings
• Second phase of the Capacity Building Programme in Romania and Hungary
• Second Regional Conference on Cross-Border Healthcare
• Second Regional Conference on patients’ rights in Cross-Border Healthcare
• Second working conference of the PISCE Platform of experts
• Secretariat
• See the EPF board on video!
• Self-medication and antibiotic resistance
• September 2014
• September 2015
• September 2016 - EUPATI: Final Milestones and Change in Sight
• September 2017 - EPF Promotes the Patients’ Perspective to European Projects
• Setting the EU patient safety and quality agenda for 2014
• Sexual Health & Well-Being Project
• Sexual health and well-being of young people with chronic conditions
• Shaping a European Health Data Space for patients and with patients
• Shaping a European Health Data Space with and for patients
• Shaping a European Health Union that delivers a new deal for patients and civil society
• Shaping a health literate Europe
• Shaping a patient-centred European health data environment
• Shaping the EU pharmaceutical legislation for patients – EPF to release advocacy toolkit for members
• Shaping the future EU policy framework for health
• Share it with your members! EPF Regional Advocacy Seminar (6-7 June 2016, the Netherlands)
• Share your e-work with us!
• Share your experience of rare disease treatments via the new Rare Barometer Voices survey
• Sharing of clinical trials results to increase transparency
• Sharing results of the PRO-STEP project
• Shot Callers Part 2
• Shot Callers: A Virtual Event on COVID-19 Vaccines
• Show that patients want to share our health data to improve research!
• Sign EPF Manifesto
• Sign Our Petition and Add YOUR Voice to Our Call for Universal Access to Healthcare!
• Sign Up
• Sjögren Europe
• Skills Training Course for Young Patient Advocates (STYPA)
• Slovakia
• Smart Open Services for European Patients
• SmartCare
• SmartCare final Conference: 6 July 2016
• SmartCare Final Meeting – Towards Better Integrated Care
• SmartCare project visits Scotland and Greece
• SmartCare project: visit of the Trieste site
• SmartCare: First meeting of the User Advisory Board
• SmartCare: Visit of the Aragon’s pilot site
• So long Camille, and thanks for all the fish!
• Social Rights
• SOSTE - Finnish Federation for Social Affairs and Health
• Spanish Chronic Patients Must be Prioritised in the COVID-19 Vaccination Strategy
• Speaker and workshop presentations for HTA seminar now available
• Special report from EPF in Gastein 2013
• Spread the word: 3rd edition of EPF Summer Training for Young Patient Advocates
• Stanimir Hasurdjiev
• State of Universal Healthcare Coverage in Europe: EPF’s view on Médecins du Monde’s recent report
• State of Universal Healthcare Coverage in Europe: EPF’s view on Médecins du Monde’s recent report
• Stella de Sabata
• Stepping up a gear on EPF Campaign
• Stepping up the involvement of the patient community in the fight against AMR
• Stop the press: ENVI committee adopts draft report on medical devices
• Strategic Plan
• Strengthening health Systems through the Tallinn Charter
• Strengthening the Capacity of Patient Organisations in Bulgaria
• Stroke Alliance for Europe - SAFE
• Stroke Alliance for Europe launches 2nd webinar in the Life After Stroke Series 2021
• Strong Patient representation at European Health Forum Gastein
• Stronger Connected: building national neurological alliances
• Structured collaboration between patients and informal carers
• STYPA 2017 - Overcoming Discrimination
• STYPA 2018 - Inclusion and Non-Discrimination
• STYPA 2019 - Shaping the Future of Patient Advocacy
• STYPA 2020 - Shaping The Future of Patient Advocacy
• STYPA 2020 - Shaping The Future of Patient Advocacy
• STYPA 2021 - Shaping the Future of Patient Advocacy
• STYPA 2022 - Sexual health and well-being for young people
• STYPA 2023 - Shortages
• STYPA 2024 - Antimicrobial Resistance (AMR)
• STYPA2021 Kick-Off
• Successful project application: EMPATHY
• Summer Training Course for Young Patient Advocates 2019: Becoming #Advocates4Health
• Summer Training Course for Young Patient Advocates 2019: Shaping the Future of Patient Advocacy “Get Ready! 45 days to go to our Third Edition!”
• Support 2005
• Support 2006
• Support 2007
• Support 2008
• Support 2009
• Supporting Member’s Capacity in Cyprus
• Supporting the growing network of EUPATI National Platforms
• Survey on access to quality care
• Survey on advancing migrant access to health services (Deadline: 31 March)
• Survey on EHR – five new languages available
• Survey Report on Continuing Professional Education (CPE)
• Survey Report on the Impact of the COVID-19 Pandemic on Patients & Patient Organisations
• Survey results: Assessing AI Awareness and Perceptions among Patient Organisations
• Susanna Palkonen
• Sustainable Development Goals
• SUSTAINS
• SUSTAINS project shifts into high gear
• SUSTAINS project: Patient Empowerment Survey available soon
• SUSTAINS’s User Requirements Report is out!
• SUSTENTO - The Latvian Umbrella Body For Disability Organization
• Swedish Disability Rights Federation
• Sylvie Vandereyd

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• Take part in new task force on inclusion of vulnerable groups’ perspectives within patient organisations
• Take part in the European survey on polypharmacy and adherence
• Take part in this consensus process about Patients’ Preferences!
• Taking Action to Engage Paediatric and Young Patients in Medicines Research and Development
• Taking Action: A Roadmap to Achieving Universal Health Coverage for All by 2030
• Taking Action: EPF Organises Meeting to Present and Discuss Next Steps to Achieve Universal Health Coverage
• Tell us how the future EU framework on Health Technology Assessment should look like!
• Tell us what you think of our revised paper on medicine prices - Participate in a virtual meeting on 21 June!
• Ten EU NGO ally to question the next Health Commissioner
• Testimonial: ‘Healthy ageing and the challenge of comorbidity’
• Thank you for contacting us
• Thank you!
• The #FightInequalities Campaign Gets Underway
• The “Patient Prescribe” Campaign: next steps
• The 4th edition of the European Health Parliament is ready to kick off
• The 4th edition of the European Health Parliament officially comes to a close
• The Board
• The Case for National Coalitions of Patient Organisations: Louder and Stronger Together
• The clock is ticking on cross-border healthcare!
• The Economist Conference
• The EHDEN consortium launches a second open call for SMEs.
• The EPF eHealth Seminar is approaching!
• The ESF+ Health Programme: “Investing in people” should not just be a budget heading but truly support better healthcare
• The EU Cancer Plan will be meaningful and fully patient-centric, says EU Commissioner Stella Kyriakides
• The EU needs to Guarantee the Delivery and Supply of Cross-Border Medical products during the COVID-19 Outbreak
• The EU4Health 2021 Work Programme – a missed opportunity to support European health NGOs to play their key role in the COVID-19 pandemic and beyond
• The EU4Health Civil Society Alliance Appeals to President von der Leyen to appoint a Vice-President for Health, Wellbeing and Social Rights
• The EU4Health Civil Society Alliance supports the European Health Union Manifesto
• The EUPATI face-to-face training event in Madrid: 4 days of fun and hard work
• The EUPATI Toolbox on Medicines Research and Development is LIVE!
• The European Cancer Patient’s Bill of Rights
• The European Commission launches public consultation on the draft guidance on lay summaries of clinical trials
• The European Commission must not hold back in the fight against AMR
• The European Health Forum Gastein Turns 20!
• The European Patients' Academy (EUPATI)
• The European Patients' Forum contributes to the Health Emergency Preparedness and Response Authority’s (HERA) review
• The European Patient's Forum mourns the death of Noël Wathion, former EMA Deputy Executive Director
• The European Patients’ Forum calls for a patient-centred revision of the EU pharmaceutical legislation
• The European Patients’ Forum calls for ensuring access to paediatric medicines
• The European Union Network on Patient Safety and Quality of Care is running
• The fight against breast cancer in the EU
• The first European Congress driven by patients begins today in Brussels, Belgium.
• The future of eHealth is already here
• The Future of European Public Health Research
• The Future of Healthcare in Cyprus – New perspectives for Young Patients
• The Health Literacy Blueprint from the patients’ perspective
• The impact of health professional’s mobility on patients’ rights
• The importance of vaccination for patients
• The importance of vaccination for patients
• The issues of employment for young patients
• The need for patients’ perspective to face chronic diseases
• The New Duchenne Emergency and Capacity Building Program
• the new European Health Emergency Preparedness and Response Authority (HERA)
• The official Patient Empowerment Campaign video!
• The page cannot be found - 404
• The Patient Empowerment Campaign - Your vital role!
• The Patient Empowerment Campaign: more ways to get involved
• The patients’ perspective at DIA Euromeeting
• The presentations of the training on Transparency & Ethics are now available!
• The Spanish Platform for Patient Organisations responds to COVID19
• The value of health in practice in Hungary
• The Vilnius Declaration to ensure future sustainable healthcare systems
• The votes are closed, and the campaign goes on
• Theodor Petrov brings EMPATHY to comics
• Third Regional Conference on Cross-Border Healthcare
• Three working groups to empower EPF Policy Advisory Group
• Time to Reflect on Avenues to Improve HTA Processes
• Tips and Tricks when working remotely in the Time of COVID-19
• To protect and advance what matters most to everyone in Europe: A Commission Vice-President for Health
• Together, let’s demonstrate the added-value of patient organisations!
• Toolkits
• Tools to use the EPF Campaign for the 2014 EU Elections
• Towards a patient-centred EU mandate: Health policy with and for patients
• Towards a patient-centred EU mandate: Health policy with and for patients
• Towards an Italian coalition of patients’ representatives
• Towards an official recognition of the Patients’ Rights Day?
• Towards promising opportunities with the new EURIPID collaboration
• Training on Mental Health
• Transparency
• Transparency is our legitimacy currency: let’s protect it!
• Two consultations on mHealth safety and quality: have your say!
• Two more steps towards a patient-centred health system in Portugal
• Types of Membership
• Types of patient organisations

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• Ukraine Crisis Resources Page
• Understanding AI Webinar Series #2: AI Ethics & Regulations
• Universal Access to Health event - 9th October in Brussels
• Universal Access to Health: How Can We All Contribute?
• Universal Access to Health: How can we contribute?
• Universal Health Coverage Day 2019
• Universal health, a matter of human rights and a public health priority
• Universal health, a matter of Human Rights and a public health priority
• Unmet needs of patients regarding nutrition
• Up and running EPF Capacity Building Programme
• Upcoming Consensus Meeting on Access and Equity
• Upcoming EU Strategic Agenda 2024-2029
• Upcoming Events
• Update on the draft report on medical devices
• Update on the Multi-Financial Framework
• Updates on the Joint Action CHRODIS
• Uppsala Health Summit on healthy ageing
• URGENT! CHRODIS Joint Action: Call for patients and multi-morbidity experts
• Use of medicines and antimicrobial resistance
• User acceptance of eHealth: hype, hope or reality?
• Using your e-prescription in a different country

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• Vaccination
• Vaccination for patients with chronic conditions
• Vaccines: information is key
• Valentina Strammiello
• Value Of Patient Involvement In Innovation
• Value+
• Value+ Conference Report on Patient Involvement now available
• Vasilis Karatzias
• Veronica Rubio
• Video in EU languages
• Videos
• Volunteer vacancy: Policy Assistant
• Volunteers needed to review translations of biosimilar Q&A
• Vote of the Clinical Trials Regulation
• VPP - Flemish Patients' Platform

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• Wanted! Patient associations active in the field of eating disorders
• Watch EPF Breakfast Briefings' livestreams here!
• Watch our Capacity Building Programme on video!
• Watch our Video Campaign for the 2014 EU Elections
• Watch the project Chain of Trust on video!
• WE CARE
• We Care project: how quality healthcare services can be preserved?
• WE CARE Survey: what should healthcare look like in 2035?
• We Have Moved! EPF Has a New Address from This Summer On!
• We need you! Survey on defining access from the patient's perspective
• We need your help to ensure patient involvement is part of Medical Devices legislation
• We need your input to finalise EPF’s Position on Food and Nutrition!
• We need your input to finalise our Roadmap to achieve Universal Health Coverage!
• Webinar 1: Patient advocacy on AMR in the EU: Where do we begin?
• Webinar 2: How do we use our voices to reach a wider community for AMR?
• Webinar 3: How can we take AMR advocacy to the next level, including policymaking?
• Webinar series | Amplifying patient advocacy on AMR
• WEBINAR: "Active Surveillance: Looking for Quality of Life after Diagnosis of low grade Prostate Cancer"
• Webinar: "E-health and telemedicine – what are we really talking about?”
• Webinar: How can patient organisations access pro bono legal support?
• WEBINAR: Model Access Solutions Initiative
• Webinar: patient involvement in clinical nutrition guidelines
• Webinar: Young patients and employment: Barriers and good practices - Launch of the EPF Youth Group WAYS survey results
• Website Policy
• Website under construction
• Weekly Mailing
• Welcome Brooke!
• Welcome Camille, our new Membership Officer!
• Welcome Diana!
• Welcome Stefania and Leah
• Welcome to 2016!
• Welcome to Adriana and Zuzanna!
• Welcome to EPF Connect, the EPF Online Platform for members only!
• Welcoming a new member: European Haemophilia Consortium
• WFIPP - World Federation of Incontinence and Pelvic PROBLEMS
• What does ‘EMPATHY’ mean for young patients?
• What does quality care mean for you?
• What is a patient organisation?
• What is to be a patient today in Europe?
• What is your future of Europe?
• What our role means for the Finnish patient?
• What patients expect from the EU Elections?
• What the EU should start, stop or do differently?
• Who can access fertility treatments in Europe?
• WHO has designated 2021 the International Year of Health and Care Workers
• WHO Meeting on Patient-Centred Services
• Who supports us?
• Who we are
• Why do victims of adverse drug reactions not get compensation in Europe?
• Why Empowerment matters – a medical student's perspective
• Why health is crucial to European Recovery?
• Why the vaccination of healthcare professionals is important to patients
• Work and Youth Strategy (WAYS)
• Working Group on Digital Health
• Working Group on Patient Empowerment
• Working Group on Universal Access to Healthcare
• Working Groups
• Working party on nutrition and health: report from the Berlin conference available!
• Working together for a PARADIGM shift for patient engagement in medicines development
• Working with a chronic condition
• Workshop on “Access to and Uptake of Biosimilars”
• Workshop on the Revision of EU Medical Devices Directive
• WORKSHOP: Digital Tools for Patient Empowerment and Person-Centred Care - best practices that boost cooperation between patients and healthcare professionals
• World Atopic Eczema Day
• World Autism Awareness Day
• World Continence Week 2020
• World Duchenne Awareness Day
• World Duchenne Organization
• World Earth Day
• World Haemophilia Day
• World Health Day 2013 campaigns on high blood pressure
• World Health Day 2018: ‘Universal Health Coverage: everyone, everywhere’
• World Health Day 2020
• World Health Day 2021
• World Health Day 2021: Building a fairer, healthier world for everyone
• World Health Day and Diabetes – JA CHRODIS Activities
• World Health Day: European patients' organisations speak out on Universal Health Coverage
• World Mental Health Day 2020: Growth, resilience and self-determination: essential pillars of future mental health services
• World Parkinson Day 2021
• World Patient Safety Day
• World Patient Safety Day 2021
• World Patient Safety Day 2021
• World Patient Safety Day 2022 - Key takeaways
• World Primary Immunodeficiencies (PI) Week
• World Pulmonary Hypertension Day – photo contest
• World Scleroderma Day
• World Tuberculosis Day

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• Yann Heyer
• Yasemin Zeisl
• Young Patient Advocate? Our New Initiative is just for You!
• Young Patient Advocates learning about the Virtues of Leadership
• Young Patients Advocates Get Ready for Summer Training
• Young Patients present at Yo! Fest
• Young patients talking to the EU
• Young people in need: A unique European map of helplines and services
• Your feedback needed! EPF Roadmap on Patient Empowerment
• Your feedback needed: Charter on Patient Empowerment
• Your feedback needed: EPF Position Paper on Quality of Care
• Your feedback needed: the future of the Health Technology Assessment Network
• Your input needed: CHRODIS questionnaire on multimorbidity training programmes
• Your input needed: ISPOR Patient Representative Roundtable
• Your Opinion Matters! Take on our New Surveys
• Youth Advocacy during the COVID-19 Pandemic
• Youth Group
• Youth Group Activities
• Youth Group at the #EPFCongress2021
• Youth Group Members
• Youth Group: Advocacy and Fundraising During a Pandemic
• Youth Strategy
• Youtube link

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• Zilvinas Gavenas
• ZOPS - Patient Organisations Association of Slovenia