Full Members
EPF Full members consist of patient organisations who meet the 5 following criteria:
Legitimacy EPF member organisations should be registered in one of the EU member states. |
Democracy EPF members should have governing bodies, which are elected by their members, who shall be patients, their carers, or their elected representatives. |
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EPF pan-European disease-specific organisations should have members of their own in more than half of the EU member states. |
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Accountability & Consultation Statements and opinions should reflect the views and opinions of their memberships, and consultation procedures with those memberships should be put in place. |
Transparency EPF members should disclose their sources of funding and make their audited financial accounts available. |
Representation
Full Members
- Alzheimer Europe (Europe)
- AOECS - Association of European Coeliac Societies (Europe)
- AOPP - Association for the Protection of Patients' Rights (Slovak Republic)
- BAG Selbsthilfe - Federal Association of Self-Help Organisations for people with disabilities and chronic diseases and their relatives (Germany)
- CF Europe - Cystic Fibrosis Europe (Europe)
- COPAC - Coalition of Patients' Organisations with Chronic Diseases (Romania)
- DE - Dystonia Europe (Europe)
- Digestive Cancers Europe (Europe)
- EAMDA - European Alliance of Neuromuscular Disorders Associations (Europe)
- EATG - European Aids Treatment Group (Europe)
- ECHDO – European Congenital Heart Disease Organisation (Europe)
- EFA - European Federation of Allergy and Airways Diseases Patients' Associations (Europe)
- EFAPH - European Federation of Associations of Patients with Haemochromatosis (Europe)
- EFCCA - European Federation of Crohn's and Ulcerative Colitis Associations (Europe)
- EFHPA - European Federation of Homeopathic Patients' Associations (Europe)
- EGAN - Patients Network for Medical Research and Health (Europe)
- EHC - European Haemophilia Consortium (Europe)
- EHLTF - European Heart and Lung Transplant Federation (Europe)
- EKPF - European Kidney Patients' Federation (Europe)
- ELPA - European Liver Patients’ Association (Europe)
- EMHA - European Migraine and Headache Alliance (Europe)
- EMSP - European Multiple Sclerosis Platform (Europe)
- ENUSP - European Network of (ex)users and survivors of psychiatry (ENUSP) (Europe)
- EPIK - Estonian Chamber of Disabled People (Estonia)
- EUFAMI - European Federation of Associations of Families of People with Mental Illness (Europe)
- EUROPA UOMO - The European Prostate Cancer Coalition (Europe)
- EUROPA DONNA - European Breast Cancer Coalition (Europe)
- EUROPSO - European Umbrella Organisation for Psoriasis Movements (Europe)
- EURORDIS - European Organisation for Rare Diseases (Europe)
- FE - Fertility Europe (Europe)
- FEP - Spanish Patients' Forum (Spain)
- FESCA- Federation of European Scleroderma Associations (Europe)
- FPP - Federation of Polish Patients (Poland)
- GAMIAN-Europe - Global Alliance of Mental Illness Advocacy Networks (Europe)
- Global Heart Hub - The Alliance of Heart Patient Organisations (Europe)
- Greek Patients Association (Greece)
- HAPO - Hungarian Alliance of Patients' Organisations (Hungary)
- IDF Europe - International Diabetes Federation European Region (Europe)
- IF - International Federation for Spina Bifida and Hydrocephalus (International*)
- IOF - International Osteoporosis Foundation (International*)
- IPOPI - International Patient Organisation for Primary Immunodeficiencies (International*)
- KUZ - Coalition of Association in Healthcare (Croatia)
- KZZ - Confederation of Health Protections (Bulgaria)
- LPOAT - Council of Representatives of Patients’ organisations (Lithuania)
- LUCE - Lung Cancer Europe (Europe)
- LUPUS Europe (Europe)
- MHN - Malta Health Network (Malta)
- NAPO - National Association of Patients' Organizations (Czech Republic)
- NCDP – National Confederation of Disabled People (Greece)
- NPO - National Patients' Organisation (Bulgaria)
- Pancyprian Federation Of Patients Associations and Friends (Cyprus)
- Parkinson's Europe (Europe)
- PHA Europe - Pulmonary Hypertension Association Europe (Europe)
- Plataforma de Organizaciones de Patientes (Spain)
- RI - Retina International (Europe)
- SOSTE - Finnish Federation for Social Affairs and Health (Finland)
- SUSTENTO - The Latvian Umbrella Body For Disability Organization (Latvia)
- Sjögren Europe (Europe)
- Swedish Disability Rights Federation (Sweden)
- World Duchenne Organization (International*)
- ZOPS - Patient Organisations Association of Slovenia (Slovenia)
* International organisations that do not have a formally constituted branch in Europe, but are active in the European region, may become Full members.