EPF's reaction to the European Parliament’s adoption of the European Health Data Space report

The European Patients’ Forum (EPF) welcomes the adoption of the report on the European Health Data Space at today’s plenary session. 

We believe that the Parliament’s report improves the Commission’s proposal to empower European patients and citizens to access and control their personal healthcare data in an electronic format and facilitate secure sharing for research and altruistic purposes. 

We particularly welcome the changes to Article 33 which include an opt-out mechanism for sharing health data for secondary use. We suggest that health data access bodies provide an accessible and easily understandable mechanism for natural persons to express their objection against all or part of their personal electronic health data being processed for some or all purposes for secondary use listed in Article 34, with the exception of public health emergencies and regulatory purposes.  

Read the full statement here.