EPF Barometer

The EPF Barometer on the Involvement of Patient Organisations in Health Policy at National Level is a first-of-its-kind initiative developed to assess how patient organisations are involved in health policymaking across Europe.

Amplifying Patient Advocacy on Antimicrobial Resistance (AMR)

Understanding Antimicrobial Resistance (AMR) and its impact on patients. The AMR Info Point is dedicated to providing extensive resources on AMR. Our goal is to improve awareness and understanding of AMR among patient communities.

HTA Info Point

Patient Involvement in Health Technology Assessment (HTA)

Health Technology Assessment (HTA) is a systematic evaluation process used to assess the properties, effects, and impacts of health technology. This includes not just medical devices and equipment, but also drugs, medical procedures, and broader healthcare policies and systems.

Knowledge Hub on Artificial Intelligence in Healthcare

The AI Knowledge Hub is dedicated to help patient organisations and other interested stakeholders to better engage in debates, projects and initiatives on AI in healthcare, both at national and European levels.

WHAT WE DO

Policy and advocacy, icon

Policy and advocacy

EPF is active in a number of policy areas to ensure that patients' views are incorporated into the EU policy agenda. We develop campaign and advocacy strategies

Projects icon

Projects

EPF has been active in various health-related EU projects over the past few years both as a leader or associate partner to gather patient-related evidence based information

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Capacity building

The Capacity Building Programme was designed in 2012 to respond to needs and concerns which have been identified by our membership during previous activities of EPF.

NEWS AND UPDATES

22/06/26 EVENTS PATIENT EMPOWERMENT PATIENT INVOLVEMENT

Patient Organisations Welcome Publication of First Joint Clinical Assessment Under EU HTA Regulation

The joint statement, signed by 15 European patient organisations including the European Patients’ Forum (EPF), reflects on the publication of the JCA for tovorafenib and highlights both the progress made and the opportunities to further strengthen

08/06/26 PATIENT EMPOWERMENT PATIENT INVOLVEMENT DIGITAL HEALTH ARTIFICIAL INTELLIGENCE

AI Survey Report 2026

Patients see promise in AI in healthcare but call for trust, transparency and safeguards

01/06/26 EVENTS PATIENT EMPOWERMENT PATIENT INVOLVEMENT

EHDS implementation: EPF raises concerns and proposes solutions

The European Patients' Forum (EPF) has published a new paper on the implementation of the European Health Data Space (EHDS), focusing on the role of Health Data Access Bodies (HDABs) in issuing data permits for the secondary use of health data.

Upcoming events

Interested in becoming a member?

As your advocate, EPF provides many benefits to its members. We represent our members' voice at the European level on cross-cutting health issues.

Our team