ECHDO – European Congenital Heart Disease Organisation
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ECHDO is an umbrella association representing associations of patients with congenital heart disease. ECHDO works to increase understanding of CHD and support for patients of all ages: babies, children and GUCHs (grown-ups with congenital heart disease) in Europe; provide up-to-date information about CHD to patients and their families; lobby for European standards on medical and psychosocial care of CHD patients, including access to safe medicines; share information about research studies and patients’ experiences within Europe; stimulate the development of national CHD support networks; and increase its impact by liaising with other European networks.
Type: pan-European disease-specific organisation
Disease area: Congenital Heart Disease
Representative: Katja Laine, President
Address:
ECHDO
Elzenlaan 20, 2390 Westmalle
Belgium
Contact:
Tel:+358442727717
Email: k.laine@echdo.eu
For more information, please visit ECHDO's website: http://echdo.eu/
Related Information
Membership Certificate - ECHDO – European Congenital Heart Disease Organisation